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Other Indicators?

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  1. #1
    Robot Man Guest

    Default Other Indicators?


    Other than a PSA, are there any other indicators that can be
    relied on? Anything that one can do/see/feel/? ---that can be
    an indication of a reaccurance?

    Does the PSA give an area, type of cancer, anything like that?
    Is the PSA just for the area concerned with the prostate, or
    will it give a response to cancer anywhere in the body?

    I don't know all the questions, never mind the answers.

    I have cancer of the throat/tongue and in August 2006 completed
    radiation and chemo, ---so far, so good. In November of 2011, I
    also had a complete removal of my prostate via the De Vinchi,
    robot assisted procedure. It's been a year now with no
    detection.

    I get a PSA every 4 months now, but I wish there was something
    that "I" could do/see/feel, instead of going through this
    Medical Russian Roulette.

    Or are we all doomed to spin the cylinder?

    I haven't approached my Oncologist with any of this. I just
    happen to be here at the computer reading some thyroid
    newsgroups. (I have a thyroid that quit.---Levothyroxine for
    life.) and I thought I'd bring it up with you folks.

    Thanks ahead.

    Robot Man


  2. #2
    BruceS Guest

    Default Re: Other Indicators?

    On Tue, 13 Nov 2012 10:59:20 -0500, Robot Man wrote:

    >
    > Other than a PSA, are there any other indicators that can be
    > relied on? Anything that one can do/see/feel/? ---that can be
    > an indication of a reaccurance?
    >
    > Does the PSA give an area, type of cancer, anything like that?
    > Is the PSA just for the area concerned with the prostate, or
    > will it give a response to cancer anywhere in the body?
    >
    > I don't know all the questions, never mind the answers.
    >
    > I have cancer of the throat/tongue and in August 2006 completed
    > radiation and chemo, ---so far, so good. In November of 2011, I
    > also had a complete removal of my prostate via the De Vinchi,
    > robot assisted procedure. It's been a year now with no
    > detection.
    >
    > I get a PSA every 4 months now, but I wish there was something
    > that "I" could do/see/feel, instead of going through this
    > Medical Russian Roulette.
    >
    > Or are we all doomed to spin the cylinder?
    >
    > I haven't approached my Oncologist with any of this. I just
    > happen to be here at the computer reading some thyroid
    > newsgroups. (I have a thyroid that quit.---Levothyroxine for
    > life.) and I thought I'd bring it up with you folks.
    >
    > Thanks ahead.
    >
    > Robot Man


    You should probably talk to your onc about this. Information on the
    'Net is from unqualified sources (myself included) and subject to
    error. With that said, I believe PSA is only for prostate cancer. I
    don't know why you would have one taken so often, given that you have oral
    cancer. For prostate cancer, PSA is the gold standard test. There's also
    the "digital" exam of the prostate, but my gp told me that never gets it
    early enough to do any good---by the time the doctor can feel an
    abnormality, it's too late. I had colon cancer, for which there's also a
    blood test, called (IIRC) CEA. Unfortunately, that's not a very reliable
    test, and my score was well within the "safe" range immediately before the
    surgery to remove my large tumor. Some cancers produce symptoms when
    they're still treatable, others don't.

    I'm afraid that you may well find alt.support.cancer pretty inactive. For
    a while, we had a steady group of members, but I haven't seen much of
    anything here for a while. Our resident doctor (oncological radiology?)
    hasn't been here in ages. Many "regulars", including patients,
    caregivers, and other interested parties, seem to have given up in the
    face of an overwhelming volume of kooks and spammers. I wish you the best
    in your treatment.


  3. #3
    gordo Guest

    Default Re: Other Indicators?

    On Tue, 13 Nov 2012 12:14:49 -0700, BruceS <[email protected]>
    wrote:

    >On Tue, 13 Nov 2012 10:59:20 -0500, Robot Man wrote:
    >
    >>
    >> Other than a PSA, are there any other indicators that can be
    >> relied on? Anything that one can do/see/feel/? ---that can be
    >> an indication of a reaccurance?
    >>
    >> Does the PSA give an area, type of cancer, anything like that?
    >> Is the PSA just for the area concerned with the prostate, or
    >> will it give a response to cancer anywhere in the body?
    >>
    >> I don't know all the questions, never mind the answers.
    >>
    >> I have cancer of the throat/tongue and in August 2006 completed
    >> radiation and chemo, ---so far, so good. In November of 2011, I
    >> also had a complete removal of my prostate via the De Vinchi,
    >> robot assisted procedure. It's been a year now with no
    >> detection.
    >>
    >> I get a PSA every 4 months now, but I wish there was something
    >> that "I" could do/see/feel, instead of going through this
    >> Medical Russian Roulette.
    >>
    >> Or are we all doomed to spin the cylinder?
    >>
    >> I haven't approached my Oncologist with any of this. I just
    >> happen to be here at the computer reading some thyroid
    >> newsgroups. (I have a thyroid that quit.---Levothyroxine for
    >> life.) and I thought I'd bring it up with you folks.
    >>
    >> Thanks ahead.
    >>
    >> Robot Man

    >
    >You should probably talk to your onc about this. Information on the
    >'Net is from unqualified sources (myself included) and subject to
    >error. With that said, I believe PSA is only for prostate cancer. I
    >don't know why you would have one taken so often, given that you have oral
    >cancer. For prostate cancer, PSA is the gold standard test. There's also
    >the "digital" exam of the prostate, but my gp told me that never gets it
    >early enough to do any good---by the time the doctor can feel an
    >abnormality, it's too late. I had colon cancer, for which there's also a
    >blood test, called (IIRC) CEA. Unfortunately, that's not a very reliable
    >test, and my score was well within the "safe" range immediately before the
    >surgery to remove my large tumor. Some cancers produce symptoms when
    >they're still treatable, others don't.
    >
    >I'm afraid that you may well find alt.support.cancer pretty inactive. For
    >a while, we had a steady group of members, but I haven't seen much of
    >anything here for a while. Our resident doctor (oncological radiology?)
    >hasn't been here in ages. Many "regulars", including patients,
    >caregivers, and other interested parties, seem to have given up in the
    >face of an overwhelming volume of kooks and spammers. I wish you the best
    >in your treatment.

    A few of us are still lurking around.


  4. #4
    BruceS Guest

    Default Re: Other Indicators?

    On Tue, 13 Nov 2012 11:47:47 -0800, gordo wrote:

    > On Tue, 13 Nov 2012 12:14:49 -0700, BruceS <[email protected]>
    > wrote:
    >
    >>On Tue, 13 Nov 2012 10:59:20 -0500, Robot Man wrote:
    >>
    >>>
    >>> Other than a PSA, are there any other indicators that can be
    >>> relied on? Anything that one can do/see/feel/? ---that can be
    >>> an indication of a reaccurance?
    >>>
    >>> Does the PSA give an area, type of cancer, anything like that?
    >>> Is the PSA just for the area concerned with the prostate, or
    >>> will it give a response to cancer anywhere in the body?
    >>>
    >>> I don't know all the questions, never mind the answers.
    >>>
    >>> I have cancer of the throat/tongue and in August 2006 completed
    >>> radiation and chemo, ---so far, so good. In November of 2011, I
    >>> also had a complete removal of my prostate via the De Vinchi,
    >>> robot assisted procedure. It's been a year now with no
    >>> detection.
    >>>
    >>> I get a PSA every 4 months now, but I wish there was something
    >>> that "I" could do/see/feel, instead of going through this
    >>> Medical Russian Roulette.
    >>>
    >>> Or are we all doomed to spin the cylinder?
    >>>
    >>> I haven't approached my Oncologist with any of this. I just
    >>> happen to be here at the computer reading some thyroid
    >>> newsgroups. (I have a thyroid that quit.---Levothyroxine for
    >>> life.) and I thought I'd bring it up with you folks.
    >>>
    >>> Thanks ahead.
    >>>
    >>> Robot Man

    >>
    >>You should probably talk to your onc about this. Information on the
    >>'Net is from unqualified sources (myself included) and subject to
    >>error. With that said, I believe PSA is only for prostate cancer. I
    >>don't know why you would have one taken so often, given that you have oral
    >>cancer. For prostate cancer, PSA is the gold standard test. There's also
    >>the "digital" exam of the prostate, but my gp told me that never gets it
    >>early enough to do any good---by the time the doctor can feel an
    >>abnormality, it's too late. I had colon cancer, for which there's also a
    >>blood test, called (IIRC) CEA. Unfortunately, that's not a very reliable
    >>test, and my score was well within the "safe" range immediately before the
    >>surgery to remove my large tumor. Some cancers produce symptoms when
    >>they're still treatable, others don't.
    >>
    >>I'm afraid that you may well find alt.support.cancer pretty inactive. For
    >>a while, we had a steady group of members, but I haven't seen much of
    >>anything here for a while. Our resident doctor (oncological radiology?)
    >>hasn't been here in ages. Many "regulars", including patients,
    >>caregivers, and other interested parties, seem to have given up in the
    >>face of an overwhelming volume of kooks and spammers. I wish you the best
    >>in your treatment.

    > A few of us are still lurking around.


    That's good to hear. FTR, I used to post here as CSM, a nym I created to
    avoid letting everyone I knew online know about my cancer. I didn't want
    the awkward sympathy people tend to give cancer patients. Now that I'm
    cancer free, I'm more open about it. Do you have any idea who else (aside
    from Rusty) is still reading asc?


  5. #5
    gordo Guest

    Default Re: Other Indicators?

    On Tue, 13 Nov 2012 13:45:28 -0700, BruceS <[email protected]>
    wrote:

    >On Tue, 13 Nov 2012 11:47:47 -0800, gordo wrote:
    >
    >> On Tue, 13 Nov 2012 12:14:49 -0700, BruceS <[email protected]>
    >> wrote:
    >>
    >>>On Tue, 13 Nov 2012 10:59:20 -0500, Robot Man wrote:
    >>>
    >>>>
    >>>> Other than a PSA, are there any other indicators that can be
    >>>> relied on? Anything that one can do/see/feel/? ---that can be
    >>>> an indication of a reaccurance?
    >>>>
    >>>> Does the PSA give an area, type of cancer, anything like that?
    >>>> Is the PSA just for the area concerned with the prostate, or
    >>>> will it give a response to cancer anywhere in the body?
    >>>>
    >>>> I don't know all the questions, never mind the answers.
    >>>>
    >>>> I have cancer of the throat/tongue and in August 2006 completed
    >>>> radiation and chemo, ---so far, so good. In November of 2011, I
    >>>> also had a complete removal of my prostate via the De Vinchi,
    >>>> robot assisted procedure. It's been a year now with no
    >>>> detection.
    >>>>
    >>>> I get a PSA every 4 months now, but I wish there was something
    >>>> that "I" could do/see/feel, instead of going through this
    >>>> Medical Russian Roulette.
    >>>>
    >>>> Or are we all doomed to spin the cylinder?
    >>>>
    >>>> I haven't approached my Oncologist with any of this. I just
    >>>> happen to be here at the computer reading some thyroid
    >>>> newsgroups. (I have a thyroid that quit.---Levothyroxine for
    >>>> life.) and I thought I'd bring it up with you folks.
    >>>>
    >>>> Thanks ahead.
    >>>>
    >>>> Robot Man
    >>>
    >>>You should probably talk to your onc about this. Information on the
    >>>'Net is from unqualified sources (myself included) and subject to
    >>>error. With that said, I believe PSA is only for prostate cancer. I
    >>>don't know why you would have one taken so often, given that you have oral
    >>>cancer. For prostate cancer, PSA is the gold standard test. There's also
    >>>the "digital" exam of the prostate, but my gp told me that never gets it
    >>>early enough to do any good---by the time the doctor can feel an
    >>>abnormality, it's too late. I had colon cancer, for which there's also a
    >>>blood test, called (IIRC) CEA. Unfortunately, that's not a very reliable
    >>>test, and my score was well within the "safe" range immediately before the
    >>>surgery to remove my large tumor. Some cancers produce symptoms when
    >>>they're still treatable, others don't.
    >>>
    >>>I'm afraid that you may well find alt.support.cancer pretty inactive. For
    >>>a while, we had a steady group of members, but I haven't seen much of
    >>>anything here for a while. Our resident doctor (oncological radiology?)
    >>>hasn't been here in ages. Many "regulars", including patients,
    >>>caregivers, and other interested parties, seem to have given up in the
    >>>face of an overwhelming volume of kooks and spammers. I wish you the best
    >>>in your treatment.

    >> A few of us are still lurking around.

    >
    >That's good to hear. FTR, I used to post here as CSM, a nym I created to
    >avoid letting everyone I knew online know about my cancer. I didn't want
    >the awkward sympathy people tend to give cancer patients. Now that I'm
    >cancer free, I'm more open about it. Do you have any idea who else (aside
    >from Rusty) is still reading asc?

    No there was a roll call a few years ago.There is also the regular
    news posted here.


  6. #6
    Robot Man Guest

    Default Re: Other Indicators?

    In article <[email protected]>
    BruceS <[email protected]> wrote:
    |
    | On Tue, 13 Nov 2012 10:59:20 -0500, Robot Man wrote:
    |
    | >
    | > Other than a PSA, are there any other indicators that can be
    | > relied on? Anything that one can do/see/feel/? ---that can be
    | > an indication of a reaccurance?
    | >
    | > Does the PSA give an area, type of cancer, anything like that?
    | > Is the PSA just for the area concerned with the prostate, or
    | > will it give a response to cancer anywhere in the body?
    | >
    | > I don't know all the questions, never mind the answers.
    | >
    | > I have cancer of the throat/tongue and in August 2006 completed
    | > radiation and chemo, ---so far, so good. In November of 2011, I
    | > also had a complete removal of my prostate via the De Vinchi,
    | > robot assisted procedure. It's been a year now with no
    | > detection.
    | >
    | > I get a PSA every 4 months now, but I wish there was something
    | > that "I" could do/see/feel, instead of going through this
    | > Medical Russian Roulette.
    | >
    | > Or are we all doomed to spin the cylinder?
    | >
    | > I haven't approached my Oncologist with any of this. I just
    | > happen to be here at the computer reading some thyroid
    | > newsgroups. (I have a thyroid that quit.---Levothyroxine for
    | > life.) and I thought I'd bring it up with you folks.
    | >
    | > Thanks ahead.
    | >
    | > Robot Man
    |
    | You should probably talk to your onc about this. Information on the
    | 'Net is from unqualified sources (myself included) and subject to
    | error. With that said, I believe PSA is only for prostate cancer. I
    | don't know why you would have one taken so often, given that you have oral
    | cancer. For prostate cancer, PSA is the gold standard test. There's also
    | the "digital" exam of the prostate, but my gp told me that never gets it
    | early enough to do any good---by the time the doctor can feel an
    | abnormality, it's too late. I had colon cancer, for which there's also a
    | blood test, called (IIRC) CEA. Unfortunately, that's not a very reliable
    | test, and my score was well within the "safe" range immediately before the
    | surgery to remove my large tumor. Some cancers produce symptoms when
    | they're still treatable, others don't.
    |
    | I'm afraid that you may well find alt.support.cancer pretty inactive. For
    | a while, we had a steady group of members, but I haven't seen much of
    | anything here for a while. Our resident doctor (oncological radiology?)
    | hasn't been here in ages. Many "regulars", including patients,
    | caregivers, and other interested parties, seem to have given up in the
    | face of an overwhelming volume of kooks and spammers. I wish you the best
    | in your treatment.


    Thank you very much Bruce. Yes, I do have cancer of the
    throat/tongue, but I also had cancer of the prostate and it was
    completely removed. Now I go in every 4 months with a PSA and
    as I mentioned, it's like a medical form of Russian Roulette and
    I was wondering if there is anything I can do for myself.

    Thanks again Bruce. I'll shop around at the different
    newsgroups to see what I can learn. I don't see my oncologist
    for 4 months now, so I'll get to him then.

    Take care...

    Robot Man
    El Centro, CA


  7. #7
    BruceS Guest

    Default Re: Other Indicators?

    On Tue, 13 Nov 2012 21:23:47 -0500, Robot Man wrote:

    > In article <[email protected]>
    > BruceS <[email protected]> wrote:
    > |
    > | On Tue, 13 Nov 2012 10:59:20 -0500, Robot Man wrote:
    > |
    > | >
    > | > Other than a PSA, are there any other indicators that can be
    > | > relied on? Anything that one can do/see/feel/? ---that can be
    > | > an indication of a reaccurance?
    > | >
    > | > Does the PSA give an area, type of cancer, anything like that?
    > | > Is the PSA just for the area concerned with the prostate, or
    > | > will it give a response to cancer anywhere in the body?
    > | >
    > | > I don't know all the questions, never mind the answers.
    > | >
    > | > I have cancer of the throat/tongue and in August 2006 completed
    > | > radiation and chemo, ---so far, so good. In November of 2011, I
    > | > also had a complete removal of my prostate via the De Vinchi,
    > | > robot assisted procedure. It's been a year now with no
    > | > detection.
    > | >
    > | > I get a PSA every 4 months now, but I wish there was something
    > | > that "I" could do/see/feel, instead of going through this
    > | > Medical Russian Roulette.
    > | >
    > | > Or are we all doomed to spin the cylinder?
    > | >
    > | > I haven't approached my Oncologist with any of this. I just
    > | > happen to be here at the computer reading some thyroid
    > | > newsgroups. (I have a thyroid that quit.---Levothyroxine for
    > | > life.) and I thought I'd bring it up with you folks.
    > | >
    > | > Thanks ahead.
    > | >
    > | > Robot Man
    > |
    > | You should probably talk to your onc about this. Information on the
    > | 'Net is from unqualified sources (myself included) and subject to
    > | error. With that said, I believe PSA is only for prostate cancer. I
    > | don't know why you would have one taken so often, given that you have oral
    > | cancer. For prostate cancer, PSA is the gold standard test. There's also
    > | the "digital" exam of the prostate, but my gp told me that never gets it
    > | early enough to do any good---by the time the doctor can feel an
    > | abnormality, it's too late. I had colon cancer, for which there's also a
    > | blood test, called (IIRC) CEA. Unfortunately, that's not a very reliable
    > | test, and my score was well within the "safe" range immediately before the
    > | surgery to remove my large tumor. Some cancers produce symptoms when
    > | they're still treatable, others don't.
    > |
    > | I'm afraid that you may well find alt.support.cancer pretty inactive. For
    > | a while, we had a steady group of members, but I haven't seen much of
    > | anything here for a while. Our resident doctor (oncological radiology?)
    > | hasn't been here in ages. Many "regulars", including patients,
    > | caregivers, and other interested parties, seem to have given up in the
    > | face of an overwhelming volume of kooks and spammers. I wish you the best
    > | in your treatment.
    >
    >
    > Thank you very much Bruce. Yes, I do have cancer of the
    > throat/tongue, but I also had cancer of the prostate and it was
    > completely removed. Now I go in every 4 months with a PSA and
    > as I mentioned, it's like a medical form of Russian Roulette and
    > I was wondering if there is anything I can do for myself.


    That makes sense then. They're monitoring your PSA to see if the prostate
    cancer recurs. My onc kept checking CEA, even though it was "good" when
    it should have been highest. I have my PSA checked annually, since my
    father had prostate cancer. Two different cancers? That's pretty rough.
    I recall a poster here in asc who had tongue cancer, but can't recall her
    name. She had a good bit of her tongue removed, but still managed to
    perform on stage, having worked back up to speech.

    > Thanks again Bruce. I'll shop around at the different newsgroups to see
    > what I can learn. I don't see my oncologist for 4 months now, so I'll
    > get to him then.
    >
    > Take care...
    >
    > Robot Man
    > El Centro, CA


    Good luck, and please feel free to post here with any progress, news, etc.
    At one point, I found a forum site for cancer patients that seemed pretty
    good, but I don't remember what it was. I posted the URL here, but that
    would have been years ago, so probably not worth going through posts to
    find it.

    There are two kinds of newsgroups: unmoderated, which are subject to
    kooks, trolls, and spammers, and moderated, which are subject to bad
    moderators.


  8. #8
    Steve Kramer Guest

    Default Re: Other Indicators?

    Hi, Robot. Welcome to the newsgroup.

    Yes, I'm afraid that you are going to have to go through the PSA testing for
    the rest of your life; or until you get so old that you just don't care
    anymore. Generally speaking, most doctors go to semiannual tests after on
    or two years of clean reports. Then in a year or two, annual reports.
    After that, it's pretty much annual forever.

    The good part is that the trepidation that you feel now slowly dissipates.
    It took me six years after my last change in treatment, but then I have
    Stage 3, terminal cancer. I imagine for someone in your position, you'll
    start feeling better sooner, but it really differs between men.



    PSA OCT 2000 @ 46
    Biopsy NOV 2000 3+4=7, T2c
    RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    EBRT MAY - JULY 2002 @ 47
    PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    Lupron started JULY 2003 @ 48
    PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    Casodex added JUL 2006 @ 51
    Last PSA <0.10 Next draw FEB 2013 @ 58
    Illegitimati non carborundum




    "Robot Man" wrote in message
    news:[email protected] .net...


    Other than a PSA, are there any other indicators that can be
    relied on? Anything that one can do/see/feel/? ---that can be
    an indication of a reaccurance?

    Does the PSA give an area, type of cancer, anything like that?
    Is the PSA just for the area concerned with the prostate, or
    will it give a response to cancer anywhere in the body?

    I don't know all the questions, never mind the answers.

    I have cancer of the throat/tongue and in August 2006 completed
    radiation and chemo, ---so far, so good. In November of 2011, I
    also had a complete removal of my prostate via the De Vinchi,
    robot assisted procedure. It's been a year now with no
    detection.

    I get a PSA every 4 months now, but I wish there was something
    that "I" could do/see/feel, instead of going through this
    Medical Russian Roulette.

    Or are we all doomed to spin the cylinder?

    I haven't approached my Oncologist with any of this. I just
    happen to be here at the computer reading some thyroid
    newsgroups. (I have a thyroid that quit.---Levothyroxine for
    life.) and I thought I'd bring it up with you folks.

    Thanks ahead.

    Robot Man


  9. #9
    BruceS Guest

    Default Re: Other Indicators?

    On Thu, 15 Nov 2012 21:39:24 -0500, Steve Kramer wrote:

    <snip>
    > It took me six years after my last change in treatment, but then I

    have
    > Stage 3, terminal cancer. I imagine for someone in your position,
    > you'll start feeling better sooner, but it really differs between men.

    <snip>

    From what I understand, stage 3 is still treatable. It's stage 4 when
    it's spread to other organs. I had stage 3 colon cancer, but am now
    "cancer free" after surgery and chemo. Are you sure you're not
    essentially cancer free, and just monitoring for recurrence? Does
    prostate cancer treatment really differ that much?


  10. #10
    Steve Kramer Guest

    Default Re: Other Indicators?

    You are correct. Stage 3, or in my case Stage T3cN0M0, is theoretically
    curable until it isn't. Mine is Stage 3 because it entered the seminal
    vesicles. Still, we hoped it was cured. Then when it wasn't we tried
    radiation. When that didn't work we knew it was systemic.



    PSA OCT 2000 @ 46
    Biopsy NOV 2000 3+4=7, T2c
    RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    EBRT MAY - JULY 2002 @ 47
    PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    Lupron started JULY 2003 @ 48
    PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    Casodex added JUL 2006 @ 51
    Last PSA <0.10 Next draw FEB 2013 @ 58
    Illegitimati non carborundum




    "BruceS" wrote in message
    news[email protected]..

    On Thu, 15 Nov 2012 21:39:24 -0500, Steve Kramer wrote:

    <snip>
    > It took me six years after my last change in treatment, but then I

    have
    > Stage 3, terminal cancer. I imagine for someone in your position,
    > you'll start feeling better sooner, but it really differs between men.

    <snip>

    From what I understand, stage 3 is still treatable. It's stage 4 when
    it's spread to other organs. I had stage 3 colon cancer, but am now
    "cancer free" after surgery and chemo. Are you sure you're not
    essentially cancer free, and just monitoring for recurrence? Does
    prostate cancer treatment really differ that much?


  11. #11
    BruceS Guest

    Default Re: Other Indicators?

    On Fri, 16 Nov 2012 19:16:53 -0500, Steve Kramer wrote:

    > You are correct. Stage 3, or in my case Stage T3cN0M0, is theoretically
    > curable until it isn't. Mine is Stage 3 because it entered the seminal
    > vesicles. Still, we hoped it was cured. Then when it wasn't we tried
    > radiation. When that didn't work we knew it was systemic.


    I hope the story of prostate cancer being very slow-growing is true then.
    I know that in the case of colon cancer, the younger the patient is, the
    faster it grows. I hope that isn't also true for prostate cancer.


  12. #12
    Steve Kramer Guest

    Default Re: Other Indicators?

    It is true! Unfortunately.

    The good new is, as you can see by my signature below, my PSAD has gotten
    longer with each treatment; every 2ј months after surgery; every 6 3/4
    months after raditation; every 17 months after Lupron; and they haven't
    found the cancer in 6Ѕ years since adding Casodex. When it comes back, I
    expect a very long PSAD (though I have no scientific data to base that on).



    PSA OCT 2000 @ 46
    Biopsy NOV 2000 3+4=7, T2c
    RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    EBRT MAY - JULY 2002 @ 47
    PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    Lupron started JULY 2003 @ 48
    PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    Casodex added JUL 2006 @ 51
    Last PSA <0.10 Next draw FEB 2013 @ 58
    Illegitimati non carborundum




    "BruceS" wrote in message
    news[email protected]..

    On Fri, 16 Nov 2012 19:16:53 -0500, Steve Kramer wrote:

    > You are correct. Stage 3, or in my case Stage T3cN0M0, is theoretically
    > curable until it isn't. Mine is Stage 3 because it entered the seminal
    > vesicles. Still, we hoped it was cured. Then when it wasn't we tried
    > radiation. When that didn't work we knew it was systemic.


    I hope the story of prostate cancer being very slow-growing is true then.
    I know that in the case of colon cancer, the younger the patient is, the
    faster it grows. I hope that isn't also true for prostate cancer.


  13. #13
    Steve Kramer Guest

    Default Re: Other Indicators?

    I am so sorry. After reading the next response, I realized I didn't read
    your questions thoroughly.

    There are no other indicators for post-operative prostate cancer as good as
    PSA.

    PSA is only for prostates. Indeed, it stands for prostate specific
    androgen.



    PSA OCT 2000 @ 46
    Biopsy NOV 2000 3+4=7, T2c
    RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    EBRT MAY - JULY 2002 @ 47
    PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    Lupron started JULY 2003 @ 48
    PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    Casodex added JUL 2006 @ 51
    Last PSA <0.10 Next draw FEB 2013 @ 58
    Illegitimati non carborundum




    "Robot Man" wrote in message
    news:[email protected] .net...


    Other than a PSA, are there any other indicators that can be
    relied on? Anything that one can do/see/feel/? ---that can be
    an indication of a reaccurance?

    Does the PSA give an area, type of cancer, anything like that?
    Is the PSA just for the area concerned with the prostate, or
    will it give a response to cancer anywhere in the body?

    I don't know all the questions, never mind the answers.

    I have cancer of the throat/tongue and in August 2006 completed
    radiation and chemo, ---so far, so good. In November of 2011, I
    also had a complete removal of my prostate via the De Vinchi,
    robot assisted procedure. It's been a year now with no
    detection.

    I get a PSA every 4 months now, but I wish there was something
    that "I" could do/see/feel, instead of going through this
    Medical Russian Roulette.

    Or are we all doomed to spin the cylinder?

    I haven't approached my Oncologist with any of this. I just
    happen to be here at the computer reading some thyroid
    newsgroups. (I have a thyroid that quit.---Levothyroxine for
    life.) and I thought I'd bring it up with you folks.

    Thanks ahead.

    Robot Man


  14. #14
    N Guest

    Default Re: Other Indicators?



    Prostate specific antigen

    "Steve Kramer" <[email protected]> wrote in message
    news:k849dh$7h4$[email protected]..
    >I am so sorry. After reading the next response, I realized I didn't read
    >your questions thoroughly.
    >
    > There are no other indicators for post-operative prostate cancer as good
    > as PSA.
    >
    > PSA is only for prostates. Indeed, it stands for prostate specific
    > androgen.
    >
    >
    >
    > PSA OCT 2000 @ 46
    > Biopsy NOV 2000 3+4=7, T2c
    > RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    > PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    > EBRT MAY - JULY 2002 @ 47
    > PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    > Lupron started JULY 2003 @ 48
    > PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    > Casodex added JUL 2006 @ 51
    > Last PSA <0.10 Next draw FEB 2013 @ 58
    > Illegitimati non carborundum
    >
    >
    >
    >
    > "Robot Man" wrote in message
    > news:[email protected] .net...
    >
    >
    > Other than a PSA, are there any other indicators that can be
    > relied on? Anything that one can do/see/feel/? ---that can be
    > an indication of a reaccurance?
    >
    > Does the PSA give an area, type of cancer, anything like that?
    > Is the PSA just for the area concerned with the prostate, or
    > will it give a response to cancer anywhere in the body?
    >
    > I don't know all the questions, never mind the answers.
    >
    > I have cancer of the throat/tongue and in August 2006 completed
    > radiation and chemo, ---so far, so good. In November of 2011, I
    > also had a complete removal of my prostate via the De Vinchi,
    > robot assisted procedure. It's been a year now with no
    > detection.
    >
    > I get a PSA every 4 months now, but I wish there was something
    > that "I" could do/see/feel, instead of going through this
    > Medical Russian Roulette.
    >
    > Or are we all doomed to spin the cylinder?
    >
    > I haven't approached my Oncologist with any of this. I just
    > happen to be here at the computer reading some thyroid
    > newsgroups. (I have a thyroid that quit.---Levothyroxine for
    > life.) and I thought I'd bring it up with you folks.
    >
    > Thanks ahead.
    >
    > Robot Man




  15. #15
    Steve Kramer Guest

    Default Re: Other Indicators?

    You are absolutely right!!

    Thanks for the correction.



    PSA OCT 2000 @ 46
    Biopsy NOV 2000 3+4=7, T2c
    RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    EBRT MAY - JULY 2002 @ 47
    PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    Lupron started JULY 2003 @ 48
    PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    Casodex added JUL 2006 @ 51
    Last PSA <0.10 Next draw FEB 2013 @ 58
    Illegitimati non carborundum




    "N" wrote in message news:[email protected]..



    Prostate specific antigen

    "Steve Kramer" <[email protected]> wrote in message
    news:k849dh$7h4$[email protected]..
    >I am so sorry. After reading the next response, I realized I didn't read
    >your questions thoroughly.
    >
    > There are no other indicators for post-operative prostate cancer as good
    > as PSA.
    >
    > PSA is only for prostates. Indeed, it stands for prostate specific
    > androgen.
    >
    >
    >
    > PSA OCT 2000 @ 46
    > Biopsy NOV 2000 3+4=7, T2c
    > RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    > PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    > EBRT MAY - JULY 2002 @ 47
    > PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    > Lupron started JULY 2003 @ 48
    > PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    > Casodex added JUL 2006 @ 51
    > Last PSA <0.10 Next draw FEB 2013 @ 58
    > Illegitimati non carborundum
    >
    >
    >
    >
    > "Robot Man" wrote in message
    > news:[email protected] .net...
    >
    >
    > Other than a PSA, are there any other indicators that can be
    > relied on? Anything that one can do/see/feel/? ---that can be
    > an indication of a reaccurance?
    >
    > Does the PSA give an area, type of cancer, anything like that?
    > Is the PSA just for the area concerned with the prostate, or
    > will it give a response to cancer anywhere in the body?
    >
    > I don't know all the questions, never mind the answers.
    >
    > I have cancer of the throat/tongue and in August 2006 completed
    > radiation and chemo, ---so far, so good. In November of 2011, I
    > also had a complete removal of my prostate via the De Vinchi,
    > robot assisted procedure. It's been a year now with no
    > detection.
    >
    > I get a PSA every 4 months now, but I wish there was something
    > that "I" could do/see/feel, instead of going through this
    > Medical Russian Roulette.
    >
    > Or are we all doomed to spin the cylinder?
    >
    > I haven't approached my Oncologist with any of this. I just
    > happen to be here at the computer reading some thyroid
    > newsgroups. (I have a thyroid that quit.---Levothyroxine for
    > life.) and I thought I'd bring it up with you folks.
    >
    > Thanks ahead.
    >
    > Robot Man



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