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Who Is Still Out There Lurking?

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  1. #1
    Donna G. Guest

    Default Who Is Still Out There Lurking?




    It's gotten mighty quiet in here and the posts have now dropped to only
    6 posts showing!

    Stop in and say hello if you are out there lurking!

    Share a little about what is going on with you. What meds are you on?
    How are you doing overall? Anything new that you have tried?

    How are you all handling this summer and the brutal heat and humidity?

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    *********** ***********( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..




  2. #2
    Harvey Guest

    Default Re: Who Is Still Out There Lurking?

    Hi Donna, Yes, I am here. It is over a hundred each day and this area
    is about 30 inches of rain behind average years. I am taking experimental
    medicine because I can not pay the price for Enbrel any more. Over $1600 a
    month...... The new medicine gives me a little gas but other than that,,,,
    no pain anywhere. It is a new medicine made in Europe and not Oked by our
    system. I know the hard summertime is hard on you but I hope you are
    doing well.
    Harev

    "Donna G." wrote in message
    news:[email protected]..




    It's gotten mighty quiet in here and the posts have now dropped to only
    6 posts showing!

    Stop in and say hello if you are out there lurking!

    Share a little about what is going on with you. What meds are you on?
    How are you doing overall? Anything new that you have tried?

    How are you all handling this summer and the brutal heat and humidity?

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    ( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..



  3. #3
    Navy Guest

    Default Re: Who Is Still Out There Lurking?

    On 8/4/2011 10:47 AM, Donna G. wrote:
    >
    >
    >
    > It's gotten mighty quiet in here and the posts have now dropped to only
    > 6 posts showing!
    >
    > Stop in and say hello if you are out there lurking!
    >
    > Share a little about what is going on with you. What meds are you on?
    > How are you doing overall? Anything new that you have tried?
    >
    > How are you all handling this summer and the brutal heat and humidity?
    >
    > .
    > .
    > Donna
    > .
    > .
    > .
    > .
    > 1) Rejoice always, Pray continually,
    > Give thanks in all circumstances,
    > For this is God's will for you in Christ Jesus.
    > ( I
    > Thessalonians 5:16-18 NIV)
    >
    > 2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    > we call them FRIENDS......
    >
    > 3) Just because you're in pain, doesn't mean you have to be one!
    > .
    >
    >
    >

    I'm out lurking in case there are some newbies. The heat is brutal
    here, too. Mom got affected by the ozone the other day and we decided
    that when the ozone level is 2 or 3, she won't go out and I will go out
    only for the mail one time. If the heat is bad on those of us who can
    afford some cooling, imagine what it must be like on those who are so
    poor they can't afford some cooling. I pray for all of them.
    Good to hear from you, Donna.

    --
    Navy remove the fish

  4. #4
    Donna G. Guest

    Default Re: Who Is Still Out There Lurking? LJ




    Yep, this summer and the weather / air quality has been B A D!

    Really tough on so many!!!

    Records being broken left and right and not the kind of records you
    really want to see being broken!

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    *********** ***********( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..




  5. #5
    [email protected] Guest

    Default Re: Who Is Still Out There Lurking?

    WE HAD A HUGE STORM THAT KNOCKED DOWN DOZENS OF HUGE TREES BACK ON
    7/11...

    IT ALSO KNOCKED OUT ALL THE POWER FOR LAKE COUNTY, IL, WHERE I LIVE.

    POWER WAS OUT FOR 5-6 DAYS.

    THOUGHT I'D DIE W/OUT A/C-NEVER MIND NOT HAVING THE TV....AT THE 4TH DAY
    I FOUND A HOTEL W/A/C AND WENT THERE.

    VERY WORRIED THAT THE POWER WILL GO OUT AGAIN...DON'T TRUST COMED
    ANYMORE !!!


  6. #6
    x x Guest

    Default Re: Who Is Still Out There Lurking?

    9:34PM I STILL STOP IN AT TIMES BUT SEE NO POSTS MOST TIMES.
    I STILL HAVE ALL OF MY SAME ACHES AND PAINS. I DO WHAT I CAN WHEN I CAN
    AND DEAL WITH IT.
    I HOPE EVERYONE IS DOING ALL RIGHT, OR FAIR.
    THE HEAT INDEX HERE AT 9AM WAS 101. IT DROPPED THIS EVENING. WAS VERY
    WINDY AND WITH VERY DARK CLOUDS. NO RAIN SEEN YET ALTHOUGH PREDICTED..
    I'M STILL TO WEAR THE BRACE FOR THE PLANTAR FASCIITIS.. NEUROPATHY
    DOSEN'T GET BETTER..

    HOPE EVERYONE HAS A GOOD NIGHT WITH VERY LITTLE TO NO PAIN.
    MOE


  7. #7
    Donna G. Guest

    Default Re: Who Is Still Out There Lurking? Harv



    Sure hope the new med does the trick for you and keeps you going long
    term!

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    *********** ***********( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..




  8. #8
    Harvey Guest

    Default Re: Who Is Still Out There Lurking? Harv

    Thanks and we shall see. Sometimes side effects take awhile to show up but
    I try to be positive and it is not so hard on my bank account. Harv


    "Donna G." wrote in message
    news:[email protected]..



    Sure hope the new med does the trick for you and keeps you going long
    term!

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    ( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..



  9. #9
    Donna G. Guest

    Default Re: Who Is Still Out There Lurking? Moe




    Moe, is the brace helping at all? Sure hope the whole foot thing eases
    soon for you!

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    *********** ***********( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..




  10. #10
    x x Guest

    Default Re: Who Is Still Out There Lurking? Moe

    3:22PM Afternoon Donna. No the Brace isn't helping. I haven't worn it
    for a couple days now due to being tired of those looooong laces. when
    you have arthritic hands, doing and undoing laces like that is no fun.
    I told the Podiatrist that it sure would be nice if they made those with
    zippers. They can't be removed unless the laces are undone all the way
    down to the bottom eyelets. Moe


  11. #11
    Trimble B Guest

    Default Re: Who Is Still Out There Lurking?

    I'm checking every few days in the UK.
    (\__/)
    (='.'=) This is Bunny. Copy and paste Bunny into your
    (")_(") signature to help him gain world domination.



  12. #12
    Donna G. Guest

    Default Re: Who Is Still Out There Lurking?



    Hi Trimble, it's been awhile. How are you doing?

    What meds are you on these days and are they keeping your disease
    process under control?

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    *********** ***********( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..




  13. #13
    Trimble Bracegirdle Guest

    Default Re: Who Is Still Out There Lurking?

    Hi
    I'm on a COX1 (Diclofenic..very common has many Brand names)
    Anti-inflammatory. type for my Osteoarthritis in both Hips
    Had OA progressively worsening for around 10 years...I'm now 65.
    (\__/)
    (='.'=) This is Bunny. Copy and paste Bunny into your
    (")_(") signature to help him gain world domination.


  14. #14
    Donna G. Guest

    Default Re: Who Is Still Out There Lurking?




    Glad to hear the diclofenic is working for you and keeping you
    reasonably well!

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    *********** ***********( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..




  15. #15
    x x Guest

    Default Re: Who Is Still Out There Lurking?

    6:39PM Evening Donna. We are under another heat advisory today. I
    just checked the temp and it is, at this time of evening, 97.. Heat
    Index is 107. We haven't seen rain in quite a number of days now. I
    sure hope everyone living in these high temp areas are protecting
    themselves in all ways, and keeping hydrated. i'm only going out when
    absolutely needed.

    Still takeing one moment at a time in dealing with all of these
    different pains and aches.. Moe


  16. #16
    [email protected] Guest

    Default Re: Who Is Still Out There Lurking?

    JUST FOUND YOU.

    HAD ARTHRITIS SINCE 24 WHEN LAST PREGNANT-I'M NOW 68 AND 3/4

    OLD 'ART' IS IN BOTH HANDS
    BOTH KNEES AND LEFT HIP, AND SINCE MY LUMBAR DISC RUPTURED LAST YEAR I
    THINK ITS IN MY SPINE AS WELL.

    TRIED EVERY PILL IN PAST 35 YRS, ONLY ONE THAT REALLY HELPED WAS
    CELEBREX-TOOK IT FOR 6 MONTHS AND FELT SOOO MUCH BETTER-TIL I HAD A
    'MODERATE' HEART ATTACK!

    THEN DOC TOOK ME OFF OF IT;THEN XSTRNTH TYLENOL; THEN IBUPROFEN;
    NOW ON ALEVE WHICH DOES HELP SOME;

    ONE ALEVE IN MORNING TO GET ME GOING AND ANOTHER ABOUT 3 PM.



  17. #17
    Peter Guest

    Default Re: Who Is Still Out There Lurking?

    On Aug 4, 3:47*pm, DKGBee...@webtv.net (Donna G.) wrote:
    > It's gotten mighty quiet in here and the posts have now dropped to only
    > 6 posts showing!
    >
    > Stop in and say hello if you are out there lurking!
    >
    > Share a little about what is going on with you. *What meds are you on?
    > How are you doing overall? *Anything new that you have tried?
    >
    > How are you all handling this summer and the brutal heat and humidity?
    >
    > .
    > .
    > Donna
    > .
    > .
    > .
    > .
    > 1) * Rejoice always, Pray continually,
    > Give thanks in all circumstances,
    > For this is God's will for you in Christ Jesus.
    > *********** ***********( I
    > Thessalonians 5:16-18 NIV)
    >
    > 2) * 2) * ANGELS EXIST, but some times, since they don't all have wings,
    > we call them FRIENDS......
    >
    > 3) * Just because you're in pain, doesn't mean you have to be one!
    > .


    Yep. Still look in now and again.
    My ESR is rising, so will probably be round a bit more often

    Peter(UK)

  18. #18
    Donna G. Guest

    Default Re: Who Is Still Out There Lurking? Peter



    Are you in a major flare right now? Is that why your ESR is going up?

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually,
    Give thanks in all circumstances,
    For this is God's will for you in Christ Jesus.
    *********** ***********( I
    Thessalonians 5:16-18 NIV)

    2) 2) ANGELS EXIST, but some times, since they don't all have wings,
    we call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..




  19. #19
    Peter Guest

    Default Re: Who Is Still Out There Lurking? Peter

    On Aug 13, 4:52*pm, DKGBee...@webtv.net (Donna G.) wrote:
    > Are you in a major flare right now? *Is that why your ESR is going up?
    >
    > .
    > .
    > Donna
    > .
    > .Hi Donna.


    It starts to go up like this when the Enbrel is beginning to be less
    effective. I have raised the mtx dose in an attempt to head off the
    rise. We shall see what we shall see.

    Best wishes

    Peter
    > .
    > .
    > 1) * Rejoice always, Pray continually,
    > Give thanks in all circumstances,
    > For this is God's will for you in Christ Jesus.
    > *********** ***********( I
    > Thessalonians 5:16-18 NIV)
    >
    > 2) * 2) * ANGELS EXIST, but some times, since they don't all have wings,
    > we call them FRIENDS......
    >
    > 3) * Just because you're in pain, doesn't mean you have to be one!
    > .



  20. #20
    Donna G. Guest

    Default Re: Who Is Still Out There Lurking? Peter




    Peter,


    How long have you been on the enbrel now?

    Sure hope the increase in the mtx does the trick for you. If not, does
    your RD have another biologic in mind for you to try?

    I do the rituxan about every 6 - 9 months and am very happy with it. 2
    infusions 2 weeks apart and then good to go.

    Keep us posted on how you're doing!

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually, Give thanks in all
    circumstances, For this is God's will for you in Christ Jesus.
    **********( I Thessalonians 5:16-18 NIV )

    2) ANGELS EXIST, but some times, since they don't all have wings, we
    call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..


  21. #21
    Peter Guest

    Default Re: Who Is Still Out There Lurking? Peter

    On Sep 28, 2:41*pm, DKGBee...@webtv.net (Donna G.) wrote:
    > Peter,
    >
    > How long have you been on the enbrel now?
    >
    > Sure hope the increase in the mtx does the trick for you. * If not, does
    > your RD have another biologic in mind for you to try?
    >
    > I do the rituxan about every 6 - 9 months and am very happy with it. * 2
    > infusions 2 weeks apart and then good to go. *
    >
    > Keep us posted on how you're doing!
    >
    > .
    > .
    > Donna
    > .
    > .
    > .
    > .
    > 1) * Rejoice always, *Pray continually, Give thanks in all
    > circumstances, *For this is God's will for you in Christ Jesus.
    > **********( I Thessalonians 5:16-18 NIV )
    >
    > 2) * ANGELS EXIST, but some times, since they don't all have wings, we
    > call them FRIENDS......
    >
    > 3) * Just because you're in pain, doesn't mean you have to be one!
    > .


    Donna,

    Looks like I have been on it 7 years. The next step will be to
    Rituximab.

    I hope the mtx works, but it hasn't so far

    Regards

    Peter

  22. #22
    Trimble Bracegirdle Guest

    Default Re: Who Is Still Out There Lurking? Peter

    Me here to with OA in hips.
    (\__/)
    (='.'=) This is Bunny. Copy and paste Bunny into your
    (")_(") signature to help him gain world domination.


  23. #23
    Donna G. Guest

    Default Re: Who Is Still Out There Lurking? Trimble



    Do you mind if I ask you what type of symptoms you have with your hip
    arthritis?

    Do they click or grind at all? Where do you feel most of the pain?

    Have you had to have hip replacements yet?

    ..
    ..
    Donna
    ..
    ..
    ..
    ..
    1) Rejoice always, Pray continually, Give thanks in all
    circumstances, For this is God's will for you in Christ Jesus.
    **********( I Thessalonians 5:16-18 NIV )

    2) ANGELS EXIST, but some times, since they don't all have wings, we
    call them FRIENDS......

    3) Just because you're in pain, doesn't mean you have to be one!
    ..


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